Episode 7

Jaymee Hughes on Loving Noah Through Zellweger Syndrome, Saying Goodbye, and Learning to Live with Grief

Published on: 12th March, 2026

In this episode of Her Kind of Brave, Chloe and Kellie sit down with Jaymee Hughes, mum to Noah, who was born with a rare genetic condition called Zellweger syndrome. Jaymee shares the story of Noah’s life from the beginning — the excitement of falling pregnant, the subtle signs that something wasn’t quite right, and the long weeks of testing that eventually led to a life-limiting diagnosis when Noah was just four months old.

She speaks candidly about caring for a child with complex medical needs, navigating the emotional reality of being told your baby may not live past their first birthday, and the delicate balance of preparing for loss while still making the most of the time you have.

This episode also explores life after loss — returning home to a quiet house, learning how to carry grief while continuing to live, and the quiet ways Jaymee now honours Noah’s life every day.

Guess Bio: Jaymee Hughes is a mum and advocate sharing the life and legacy of her son Noah, who was born with Zellweger syndrome — a rare genetic condition that affects multiple organs and is life-limiting.

Through her honesty, Jaymee hopes to help other families navigating loss feel less alone — and to keep Noah’s story alive through the love he left behind.

You can follow Jaymee’s story on Instagram at @the_hughes_journey

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About the Podcast

Her Kind of Brave
Messy. Real. Braver than she thinks.
Her Kind of Brave is a podcast for women who know that the hardest parts of life rarely make it to the highlight reel — and that bravery often lives in the quiet, unseen moments.

Hosted by Chloe Davidson and Kellie Johnson, this show goes behind the glossy endings and into the real stories. The backstories. The messy middles. The chapters we live through before things make sense.

Each episode features raw, thoughtful conversations with women who have faced loss, illness, identity shifts, motherhood, ambition, grief, rebuilding, and becoming — and kept going anyway. These are stories of building businesses while breaking inside, navigating bodies that don’t cooperate, grieving what was hoped for, and creating meaningful lives alongside uncertainty.

Chloe and Kellie don’t show up as experts with all the answers. They show up as women in it — walking their own hard roads while holding space for others to tell the truth about theirs. Together, they create a warm, honest space where nothing needs to be wrapped in a bow and listeners are invited to simply be human.

This is a podcast for anyone who has ever wondered if they’re the only one struggling behind the scenes. For anyone navigating the space between who they were and who they’re becoming. For anyone who wants to feel less alone in the hard stuff — and more connected to the strength it takes to keep showing up.

Her Kind of Brave isn’t about perfect endings.
It’s about courage in real time.
And the power of sharing the story while you’re still living it.

If you’re craving honesty, depth, and conversations that feel like a hand on your back saying me too — this is your place.

About your host

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Chloe & Kellie

Chloe Davidson and Kellie Johnson are the voices behind Her Kind of Brave — a podcast built on honesty, depth, and the courage to tell the stories that usually stay hidden.

Chloe is a writer, podcaster, and business owner, and the co-owner of Mr Consistent. She is also the curator of the anthology In Her Own Words: IVF, Loss & Miracles. Through her work, Chloe explores womanhood, identity, grief, fertility, ambition, and the emotional load women carry — especially in the spaces between who they were and who they’re becoming.

Kellie is a mum, entrepreneur, and the founder of Kosi, a 360° wearable heat pack created from her lived experience with stage four endometriosis. A passionate advocate for women’s health, Kellie brings strength, warmth, and lived credibility shaped by miscarriage, birth trauma, chronic pain, and rebuilding life alongside illness.

Together, Chloe and Kellie create a space where women feel seen, understood, and less alone. Her Kind of Brave is rooted in real conversations — honouring the hard seasons, celebrating resilience, and reminding women that bravery doesn’t require a polished ending, only the courage to keep showing up.